Cornelia de Lange Syndrome Foundation, Inc.

Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.

• Museums & Museum Activities

• 38.

Prader Willi Association of New England Inc

PWS is a non-inherited genetic disorder which is associated with a random deletion of the 15th chromosome.

Center for Spectrum Services

Our vision is to be an exemplary educational, treatment and diagnostic center offering evidence-based programs that lead to optimal outcomes for individuals and families impacted by autism spectrum disorders.

• Birth Defects, Genetic Diseases Research

• 40.

SMS Research Foundation

The mission of the Smith-Magenis Syndrome Research Foundation is to advance scientific research leading to innovative treatment options for people living with SMS.

Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

• Fund Raising and/or Fund Distribution

• 43.

BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION

Batten Disease Support, Research, & Advocacy.

JAXENS JOURNEY INC

Our 2 year old son fought a very hard 5 week battle with pineoblastoma, passing in July of 2016.

• Birth Defects, Genetic Diseases Research

• 45.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.