• Research Institutes and/or Public Policy Analysis

• 1.

Rare Science

We are a nonprofit research organization accelerating therapeutic solutions for patients and fostering research collaboration in the rare disease community.

Rare New England Inc

Rare New England's Mission is to bring together New England patients and families touched by rare and complex disorders.

• Fund Raising and/or Fund Distribution

• 3.

Childrens Rare Disease Organization Inc

Many children are living with a rare disease.

• Public Health Programs

• 4.

Rare By Design Inc

Creating awareness of inclusion, representation and living life positively for #PWD and #RareDiseases along with their families.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 5.

Rare Genes Movement

Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.

• Patient Services�Entertainment, Recreation

• 6.

One Rare Inc

One Rare is a non-profit, 501(c)(3) organization based in Massachusetts.

Upequity Corporation

RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.

• Alliance/Advocacy Organizations

• 8.

DARE TO BE RARE INC

Join us and Dare to be Rare. Dare to be Rare is committed to raising money for rare disease research.

• Philanthropy/Charity/ Voluntarism Promotion (General)

• 9.

RARE IS BEAUTIFUL

In honor of Dee Dee Ingui, to find a cure for Peutz Jeghers Syndrome, which is a rare genetic disease.