• Fund Raising and/or Fund Distribution

• 19.

RARE GENOMICS INSTITUTE INC

RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.

• Private Grantmaking Foundations

• 20.

The Katie Moore Foundation Inc

The Katie Moore Foundation helps patients and families dealing with rare cancers.

• Fund Raising and/or Fund Distribution

• 21.

Rare Village Foundation

TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES We Empower Families to Create Cures for Rare Disease.

• Fund Raising and/or Fund Distribution

• 22.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

Rarekc Foundation

Our mission is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community.

• Fund Raising and/or Fund Distribution

• 24.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

• Fund Raising and/or Fund Distribution

• 25.

CURE RARE DISEASE INC

Nonprofit biotech leading a global collaboration to develop life-saving medicines for rare diseases Revolutionizing UltraRare Disease Treatment through Innovation and Collaboration Revolutionizing UltraRare Disease Treatment through Innovation and Collaboration What Wex27re Working Towards We envision a future where every patient has access to treatment.

• Fund Raising and/or Fund Distribution

• 26.

WARDS FOUNDATION

Save the Date for A Rare Affair Saturday February 10 2024 at Charlotte Country Club A unique wine experience with access to rare varietals vineyards and vintages benefiting families facing rare diseases.

• Fund Raising and/or Fund Distribution

• 27.

NORTH CAROLINA RARE DISEASE

Rare Disease Innovations Institute Our Mission RDII is a global nonprofit focused on educating engaging and equipping the rare disease community.