• Private Grantmaking Foundations

• 1.

Gavin R Stevens Foundation

Our mission is to raise awareness and increase funding for research, to find a treatment and cure for blindness, focusing on Leber's Congenital Amaurosis (LCA) AWARENESS OF BLINDNESS FROM LCA var ANScustomeridbce0d824930843069bb3f3f1bcfd4038 Web Ecommerce Our Sponsors carryingcolin.

• Alliance/Advocacy Organizations

• 2.

Stargardtians Inc

Our mission is to raise awareness of Stargardt’s Disease and to create opportunities for people living with Stargardt’s to further their education and develop their own business.

• Specifically Named Diseases

• 3.

Smith-Kingsmore Syndrome Foundation

Smith-Kingsmore Syndrome is a rare genetic disease.

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

• Birth Defects, Genetic Diseases

• 5.

Mitchell and Friends Foundation

To raise awareness of Mitchell Syndrome and support research into possible treatments and cures Raising awareness of Mitchell Syndrome and supporting families and children with this rare neurological disease.

• Specifically Named Diseases Research

• 6.

SLC6A1 CONNECT

People Magazine Exclusive Milestones for Maxwell What if your child was diagnosed with a disease so rare it didnt have a name.

• Fund Raising and/or Fund Distribution

• 7.

HOPE FOR HARVEY FOUNDATION INC

Register for the 4th Annual Hope for Harvey Golf Tournament on 882025.

• Specifically Named Diseases

• 8.

MLD FOUNDATION

SUPPORTING FAMILIES and INFLUENCING RESEARCH AROUND THE WORLD for METACHROMATIC LEUKODYSTOPHY .

• Birth Defects, Genetic Diseases

• 9.

Cure SPG4 Foundation

Home About SPG4 About Us Research Resources Contact More.