• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 19.

INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC

ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.

HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

• Specifically Named Diseases Research

• 21.

GRACE SCIENCE FOUNDATION

We are changing how scientific research is done.

• Eye Diseases, Blindness & Vision Impairment

• 22.

BCM FAMILIES FOUNDATION

To eradicate Blue Cone Monochromacy (BCM), to provide financial support for research, projects, activities and organizations related to the diagnosis, treatment and/or cure of Blue Cone Monochromacy ("BCM"),to establish networks and synergies with other groups and organizations dedicated to eye and/or other rare disease issues, to make support and resources available to BCM patients and their involved families, and to educate the general public regarding BCM.

• Birth Defects, Genetic Diseases Research

• 23.

Spata Foundation Inc

Our mission is to advocate, educate, and raise funds for research towards SPATA5 & SPATA5L1 Disorders The SPATA Foundation's Mission is to advocate, educate, and drive research towards SPATA5 and SPATA5L1 Related Disorders.

Malan Syndrome Foundation Inc

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

• Birth Defects, Genetic Diseases Research

• 25.

Lottie's Light Foundation

MISSION: Lottie's Light Foundation exists to illuminate a cure for rare diseases starting with CerTra Syndrome.

• Alliance/Advocacy Organizations

• 26.

Baker-Gordon Syndrome Foundation

The BakerGordon Syndrome Foundation was founded to help families affected by this syndrome make connections with one another.

• Fund Raising and/or Fund Distribution

• 27.

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

Fighting for children and families affected by 4H Leukodystrophy.