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Similar organisations to Fibrolamellar Registry Inc

Community Rebuilding

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

Social Rank

270736

Location

Bethesda

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 2.

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

Social Rank

270706

Location

Minneapolis

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Community Rebuilding

Cystic Fibrosis Research Institute

CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness.

Social Rank

13097

Location

Palo Alto

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Community Rebuilding

FABRY SUPPORT & INFORMATION GROUP

Increasing awareness for those with Fabry disease to create a brighter future, and better lives today - Education, Support, Awareness and Advocacy Founded in 1996, this group was created by Fabry patients to share information with others suffering from the disease and their families as well as educate about treatment options.

Social Rank

1776

Location

Concordia

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Community Rebuilding
  • Management & Technical Assistance

  • 5.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

Location

Mendham

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Community Rebuilding
  • Biological, Life Science Research (includes Marine Biology, Physiology, Biochemistry, Genetics, Biotechnology, etc.)

  • 6.

Cystic Fibrosis Foundation Therapeutics Inc

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

Social Rank

30591

Location

Bethesda

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 7.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

Location

San Antonio

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Community Rebuilding

THE FIBROLAMELLAR CANCER FOUNDATION

Fibrolamellar Cancer Foundation's official Twitter page.

Social Rank

2920

Location

GREENWICH

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Community Rebuilding
  • Health - General & Rehabilitative N.E.C.

  • 9.

CYSTIC FIBROSIS EDUCATIONAL SERVICES

Cystic Fibrosis Educational Services Cystic fibrosis is generally recognized as the most common fatal genetic illness in the United States affecting approximately 30000 people in the U.

Location

LONG BEACH

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