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Similar organisations to Fibrolamellar Registry Inc

Community Rebuilding

FAMILIAL DYSAUTONOMIA NOW FOUNDATION

FD NOW is a 501c3 non-profit organization dedicated to funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

Social Rank

662

Location

Buffalo Grove

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Community Rebuilding
  • Research Institutes and/or Public Policy Analysis

  • 47.

Personalized Medicine Coalition

THE PERSONALIZED MEDICINE COALITION (PMC), REPRESENTING INNOVATORS, SCIENTISTS, PATIENTS, PROVIDERS AND PAYERS, PROMOTES THE UNDERSTANDING AND ADOPTION OF PERSONALIZED MEDICINE CONCEPTS, SERVICES AND PRODUCTS TO BENEFIT PATIENTS AND THE HEALTH SYSTEM.

Location

Washington

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 48.

THE FIBROID FOUNDATION

The Fibroid Foundation is a patient-founded, advocacy organization supporting the global sisterhood Our mission is to be the premier global community of Fibroids patients.

Social Rank

21000

Location

Rockville

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Community Rebuilding
  • Biological, Life Science Research (includes Marine Biology, Physiology, Biochemistry, Genetics, Biotechnology, etc.)

  • 49.

Lmsarcoma Direct Research Foundation

Leiomyosarcoma Support & Direct Research (LMSDR) raises awareness and funds for leiomyosarcoma research.

Social Rank

221

Location

Tulsa

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Community Rebuilding
  • Medical Specialty Research

  • 50.

Global Society of Rare Genitourinary Tumors Inc

International Society dedicated to improving the care of rare GU tumors through cutting edge science and the promotion of education.

Social Rank

894

Location

Tampa

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 51.

Rare-X

PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases.

Social Rank

2618

Location

Washington

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 52.

Rare Disease Company Coalition Inc

We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve.

Social Rank

508

Location

Washington

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Community Rebuilding

COALITION FOR 21ST CENTURY MEDICINE

REGULATORY REIMBURSEMENT INTELLECTUAL PROPERTY Advanced Diagnostics Are Key to the Future of Quality Affordable Healthcare The Coalition for 21st Century Medicine represents some of the worlds most innovative diagnostic technology companies clinical laboratories researchers physicians venture capitalists and patient advocacy groups all linked by a common mission to develop and make available stateoftheart diagnostics that improve patient health.

Location

HAYMARKET

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Community Rebuilding
  • Cancer Research

  • 54.

TargetCancer Foundation Inc

TargetCancer Foundation (TCF) works to advance the development of more effective & personalized treatments for people with rare cancers.

Social Rank

2076

Location

Cambridge

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