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Similar organisations to Fibrolamellar Registry Inc

Community Rebuilding

APBD RESEARCH FOUNDATION

Supporting individuals and families affected by Adult Polyglucosan Body Disease (APBD), and accelerating improved APBD diagnoses, care and treatment options.

Social Rank

872

Location

Brooklyn

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Community Rebuilding
  • Private Independent Foundations

  • 74.

The Leandro P Rizzuto Foundation

Welcome to ALS Finding a Cure ALS FAC is proud to announce that we provided initial funding for Amylyx which recently received FDA approval for Relyvrio the first new ALS drug in over five years.

Location

Boynton Beach

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Community Rebuilding

LUNG CANCER FOUNDATION OF AMERICA

Improvement in survivorship of lung cancer patients through funding transformative science.

Social Rank

14563

Location

New Ulm

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Community Rebuilding
  • Cancer Research

  • 76.

Dianas Fibroid Foundation Inc

Dianas Fibroid Foundation DFF was established in honor of Diana Leigh Tomkinson who courageously battled a rare malignancy for nearly 4 years that may have been associated with her decades long struggles with uterine fibroids leiomyomas.

Location

Eastham

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Community Rebuilding
  • Public Health Programs

  • 77.

Ur Medicine Home Care Community Services Inc

One of the nation's top academic medical centers, with an unwavering commitment to health research that translates into real-world cures.

Social Rank

33369

Location

Webster

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 78.

Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

Social Rank

70

Location

Lansdale

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Community Rebuilding
  • Cancer Research

  • 79.

RARE CANCER RESEARCH FOUNDATION

Dedicated to finding cures for rare cancers.

Social Rank

2368

Location

DURHAM

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Community Rebuilding
  • Specifically Named Diseases

  • 80.

CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.

Social Rank

1071

Location

Morristown

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Community Rebuilding

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

Social Rank

32243

Location

Cincinnati

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