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Similar organisations to Fibrolamellar Registry Inc

Community Rebuilding
  • Hospitals and Primary Medical Care Facilities

  • 109.

Center for Medical Technology Policy

Center for Medical Technology Policy Home of #GPC (Green Park Collaborative), a multi-stakeholder forum developing #CoreOutcomeSets for clinical trial design.

Social Rank

423

Location

Baltimore

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 110.

Incyte Charitable Giving Foundation

Incyte’s official Twitter. Ready to Solve On.

Social Rank

11967

Location

Wilmington

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 111.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

Social Rank

2896

Location

Saint Petersburg

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Community Rebuilding
  • Research Institutes and/or Public Policy Analysis

  • 112.

Consilium Scientific Us Inc

Patients deserve better clinical research Consilium Scientific is an independent nonprofit organisation aiming to improve clinical research through scientific rigour and transparency UPCOMING EVENTS and NEWS Sign up Sign up Learn More Learn More Visit Read OUR PURPOSE Create a platform for initiatives and individuals to collaborate in improving the quality of clinical research Drive change in attitudes and practice in clinical research through education and advocacy Campaign for policy changes that will increase the value of clinical research for patients and society Consilium wins NIHR grant to lead the RareCare project BOARD OF TRUSTEES Eric Low OBE John HickmanDSc Sir Andrew Dillon Dr.

Location

Gaithersburg

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Community Rebuilding
  • Other Medical Research N.E.C.

  • 113.

The Human Anatomy Project Corporation

The Human Anatomy Project is a promising approach for achieving precision medicine.

Social Rank

63

Location

Tustin

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Community Rebuilding

Middle East Cystic Fibrosis Association Inc

Working to help Middle East Cystic Fibrosis patients live longer healthier lives.

Social Rank

1133

Location

Chestnut Hill

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Community Rebuilding

Myhre Syndrome Foundation

Myhre Syndrome Foundation is dedicated to serving Myhre syndrome families by providing a network of hope and support.

Social Rank

77

Location

Richardson

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Community Rebuilding

Medical Oncology Association of Southern California

Our mission is to advance and protect the ability of cancer patients to obtain, and oncology physicians to provide, optimal cancer care.

Social Rank

617

Location

Hesperia

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Community Rebuilding

Upequity Corporation

RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.

Social Rank

304

Location

Menomonee Falls

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