Similar organisations to Fibrolamellar Registry Inc
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Hospitals and Primary Medical Care Facilities
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109.
Center for Medical Technology Policy
Center for Medical Technology Policy Home of #GPC (Green Park Collaborative), a multi-stakeholder forum developing #CoreOutcomeSets for clinical trial design.
423
Baltimore
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Fund Raising and/or Fund Distribution
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110.
Incyte Charitable Giving Foundation
Incyte’s official Twitter. Ready to Solve On.
11967
Wilmington
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Diseases, Disorders, Medical Disciplines N.E.C.
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111.
LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC
Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.
2896
Saint Petersburg
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Research Institutes and/or Public Policy Analysis
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112.
Consilium Scientific Us Inc
Patients deserve better clinical research Consilium Scientific is an independent nonprofit organisation aiming to improve clinical research through scientific rigour and transparency UPCOMING EVENTS and NEWS Sign up Sign up Learn More Learn More Visit Read OUR PURPOSE Create a platform for initiatives and individuals to collaborate in improving the quality of clinical research Drive change in attitudes and practice in clinical research through education and advocacy Campaign for policy changes that will increase the value of clinical research for patients and society Consilium wins NIHR grant to lead the RareCare project BOARD OF TRUSTEES Eric Low OBE John HickmanDSc Sir Andrew Dillon Dr.
Gaithersburg
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Other Medical Research N.E.C.
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113.
The Human Anatomy Project Corporation
The Human Anatomy Project is a promising approach for achieving precision medicine.
63
Tustin
Middle East Cystic Fibrosis Association Inc
Working to help Middle East Cystic Fibrosis patients live longer healthier lives.
1133
Chestnut Hill
Myhre Syndrome Foundation
Myhre Syndrome Foundation is dedicated to serving Myhre syndrome families by providing a network of hope and support.
77
Richardson
Medical Oncology Association of Southern California
Our mission is to advance and protect the ability of cancer patients to obtain, and oncology physicians to provide, optimal cancer care.
617
Hesperia
Upequity Corporation
RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.
304
Menomonee Falls








