• Fund Raising and/or Fund Distribution

• 1.

Renu Syndrome United

ReNU Syndrome Variants in RNU42 Uncovered as One of the Most Prevalent Causes of Neurodevelopmental Disorders Discovery Renews Hope for Affected Families Worldwide Characteristics may include Developmental Motor and Intellectual Delays Absent or Delayed Speech and Language Seizures Brain Abnormalities Small Head Size Distinct Facial Features Low Muscle Tone and Drooling Autism Spectrum Disorder Short Stature BoneSkeletal Anomalies Vision Issues and more More Information Big thanks to the researchers clinicians geneticists in these articlesfor this longawaited revelation.

• Surgery

• 2.

International Society for the Advancement of Spine Surgery ISASS

The organization serves as a scientific, and educational society that provides a forum for discussion and understanding of all aspects of basic and clinical science and other fundamental topics to restore and improve motion and function of the spine.

• Nerve, Muscle, and Bone Research

• 3.

Joshuas Future of Promises Inc

Joshua’s Future Of Promises is a non-profit organization set up by Joshua Scoble’s family.

Scheuermanns Disease Fund

Scheuermann's Disease Fund - Raising Global Awareness for this Spinal Deformity The Scheuermann’s Disease Fund was created to improve the public's awareness and recognition of this spinal deformity, work towards improving early detection in adolescents, and to work with the medical community to better understand the long-term secondary effects Scheuermann's can cause.

• Neurology, Neuroscience

• 5.

Down With Dystonia

Our Mission Down with Dystonia strives to support, educate, and empower people living with dystonia and their families while raising awareness about this third most common movement disorder.

• Specifically Named Diseases

• 6.

PERTHES KIDS FOUNDATION

Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteonecrosis) that makes it painful to walk.

• Alliance/Advocacy Organizations

• 7.

Coffin-Siris Syndrome Foundation

Coffin-Siris Syndrome Foundation is a 501c3 that exists to connect, support, and inform those affected by Coffin-Siris Syndrome and related disorders and promote related research.

Ehlers-Danlos Research Foundation

We strive to promote evidence-based Neuromuscular and Musculoskeletal medicine for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder.

• Alliance/Advocacy Organizations

• 9.

HypoPARAthyroidism Association, Inc.

Independent non-profit devoted to helping those with ALL forms of hypoparathyroidism.