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Similar organisations to International Sacral Agenesis / Caudal Regression Association

Community Rebuilding
  • Specifically Named Diseases

  • 37.

NATIONAL SCOLIOSIS FOUNDATION INC

Scoliosis affects 2-3% of the population, or one out of every forty children, and there is no cure.

Social Rank

8200

Location

Stoughton

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Community Rebuilding
  • Arthritis

  • 38.

International Spine Study Group Foundation

Members of the ISSG practice at sites across the United States and Internationally at sites in Canada and Japan.

Location

Brighton

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Community Rebuilding
  • Alzheimer's

  • 39.

Ftd Disorders Registry LLC

The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).

Social Rank

1663

Location

King of Prussia

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Community Rebuilding

Center for Ehlers Danlos Syndrome Alliance Inc

Proudly helping those who have EDS and bring awareness to the condition.

Social Rank

10878

Location

Cass City

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Community Rebuilding

American Syringomyelia Alliance Project, Inc.

ASAP's mission: "to improve the lives of persons affected by Syringomyelia, Chiari Malformation and related disorders while we find the cure.

Location

Longview

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Community Rebuilding
  • Nonmonetary Support N.E.C.*

  • 42.

Curedrpla Inc

I’m a parent advocate for DRPLA, a rare genetic disease.

Social Rank

169

Location

Brooklyn

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 43.

Alstrom Angels Corp

www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

Social Rank

2206

Location

Lubbock

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Community Rebuilding
  • Patient Services�Entertainment, Recreation

  • 44.

PHACE SYNDROME COMMUNITY INC

PHACE Syndrome Community is a nonprofit supporting families and individuals with a PHACE syndrome diagnosis, and researchers with an interest in #PHACEsyndrome.

Social Rank

1838

Location

ATLANTA

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Community Rebuilding
  • Mutual/Membership Benefit Organizations, Other N.E.C

  • 45.

SCA27b Ataxia Foundation

Gliding into the future to beat Ataxia Our mission is to improve the quality of life of individuals and families affected by SCA27b while promoting research and treatments for Ataxia.

Location

Murfreesboro

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