Similar organisations to International Sacral Agenesis / Caudal Regression Association
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Specifically Named Diseases
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37.
NATIONAL SCOLIOSIS FOUNDATION INC
Scoliosis affects 2-3% of the population, or one out of every forty children, and there is no cure.
8200
Stoughton
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Arthritis
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38.
International Spine Study Group Foundation
Members of the ISSG practice at sites across the United States and Internationally at sites in Canada and Japan.
Brighton
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Alzheimer's
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39.
Ftd Disorders Registry LLC
The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).
1663
King of Prussia
Center for Ehlers Danlos Syndrome Alliance Inc
Proudly helping those who have EDS and bring awareness to the condition.
10878
Cass City
American Syringomyelia Alliance Project, Inc.
ASAP's mission: "to improve the lives of persons affected by Syringomyelia, Chiari Malformation and related disorders while we find the cure.
Longview
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Nonmonetary Support N.E.C.*
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42.
Curedrpla Inc
I’m a parent advocate for DRPLA, a rare genetic disease.
169
Brooklyn
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Birth Defects, Genetic Diseases Research
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43.
Alstrom Angels Corp
www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.
2206
Lubbock
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Patient Services�Entertainment, Recreation
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44.
PHACE SYNDROME COMMUNITY INC
PHACE Syndrome Community is a nonprofit supporting families and individuals with a PHACE syndrome diagnosis, and researchers with an interest in #PHACEsyndrome.
1838
ATLANTA
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Mutual/Membership Benefit Organizations, Other N.E.C
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45.
SCA27b Ataxia Foundation
Gliding into the future to beat Ataxia Our mission is to improve the quality of life of individuals and families affected by SCA27b while promoting research and treatments for Ataxia.
Murfreesboro






