• Alliance/Advocacy Organizations

• 73.

Sickle Cell Disease Association of America, Inc.

The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.

• Nerve, Muscle, and Bone Diseases

• 74.

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

RSDSA's mission is to provide support, education, and hope to everyone affected by #CRPS / #RSD while we drive research to develop better treatment and a cure.

Alpha-1 Foundation, Inc.

Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency.

Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

• Management & Technical Assistance

• 77.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Alliance/Advocacy Organizations

• 78.

HS Connect

We are a nonprofit 501(c)(3) Hidradenitis Suppurativa Org.

• Nerve, Muscle, and Bone Diseases

• 79.

CRMO FOUNDATION

Supporting CRMO patients by furthering the efforts of life-changing research, increasing access to resources and education and promoting awareness.

• Alliance/Advocacy Organizations

• 80.

Agape Roots Foundation Incorporated

Dedicated to raising awareness for sickle cell anemia one action at a time.

• Patient Services�Entertainment, Recreation

• 81.

HLH Heroes Foundation Not for Profit

"NO ONE FIGHTS ALONE" The mission of HLH Heroes Foundation is to provide support to individuals and families impacted by HLH.