• Alliance/Advocacy Organizations

• 64.

PCD KS FOUNDATION

Working together to find a cure and improve care for those with ciliary disorders and their families by increasing awareness, research and support.

• Nerve, Muscle, and Bone Diseases

• 65.

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

RSDSA's mission is to provide support, education, and hope to everyone affected by #CRPS / #RSD while we drive research to develop better treatment and a cure.

• Youth Development Programs

• 66.

Supporting Our Sicklers Parent

S. O. S. is committed to providing Sickle Cell education to parents and guardians of children with SCD while supporting research and awareness.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 67.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

The RYR-1 Foundation

This organization is to raise awareness, educate, provide support, and raise funds for research.

• Patient Services�Entertainment, Recreation

• 69.

EDS Guardians, Inc

World's 1st patient-to-patient "pay-it-forward" 501(c)(3) nonprofit charity that helps Ehlers-Danlos Syndromes patients who lack support and need vital care.

• Management & Technical Assistance

• 70.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Specifically Named Diseases

• 71.

Cold Agglutinin Disease Foundation Inc

Cold Agglutinin Disease Foundation Inc, CAD Foundation was created in 2019 as a non-profit, (501)(c)(3) corporation.

• Other Medical Research N.E.C.

• 72.

Every Cure Inc

We leverage #ai to unlock the power of each and every drug to treat each and every potential disease they possibly can.