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Similar organisations to International Sacral Agenesis / Caudal Regression Association

Community Rebuilding
  • Alliance/Advocacy Organizations

  • 703.

Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

Social Rank

11458

Location

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 704.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

Social Rank

2304

Location

AUSTIN

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Community Rebuilding
  • Services to Promote the Independence of Specific Populations

  • 705.

COUNCIL ON AGING OF SOUTHWESTERN OHIO

Council on Aging is the Area Agency on Aging for southwestern Ohio including Butler, Clermont, Clinton, Hamilton and Warren counties.

Social Rank

6465

Location

Blue Ash

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Community Rebuilding
  • Alzheimer's

  • 706.

Multiple Hereditary Exostoses Learning System Inc

The MHE Learning System (MHELS) is committed to improving lives of people with MHE through collaboration and shared learning.

Social Rank

125

Location

Haydenville

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Community Rebuilding

Hunters CMT4B3 Research Foundation Inc

Pioneering cutting edge scientific research to develop treatments for CMT4B3 patients and children with rare neuromuscular diseases.

Social Rank

645

Location

Scarsdale

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Community Rebuilding
  • Digestive Diseases, Disorders

  • 708.

Ostomy 101 Inc

HOME Ostomy Basics Patient Classes Donate Supplies Events Corstrata Leader Resources Donate to Ostomy 101 Vendor Information For Clinicians Irrigation Ostomy Supply Providers Free Samples Find Ostomy Supplies Bags Accessories Belts Clothing Support Programs Survey Results San Diego Support Group Contact US Terms Conditions How to LIVE with an Ostomy More Used by 200 US Hospitals If you39re preparing for or have had ostomy surgery you may be wondering about recovery ostomy supplies finding support and navigating daily life with an ostomyincluding resuming hobbies exercising and traveling.

Location

San Diego

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 709.

Tough Genes Inc

Currently, there is no treatment for IRF2BPL-Related Disorder.

Social Rank

138

Location

Petersburg

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Community Rebuilding
  • Counseling Support Groups

  • 710.

Agewise Living Inc

this is a test page Agewisea 501 C nonprofit Where Hope Resides Who We Are Our Mission and Vision Agewise is a 501c nonprofit organization that provides free therapy to lowincome adults aged 65 and over.

Location

Kentfield

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 711.

GENERATION PATIENT INC

Generation Patient facilitates events, online programs, and advocacy initiatives for young adults with chronic and rare conditions to ensure they have the opportunities and resources to thrive.

Social Rank

575

Location

GREENWOOD

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