Similar organisations to International Sacral Agenesis / Caudal Regression Association
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Nerve, Muscle, and Bone Diseases
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694.
CureDuchenne
We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
23274
Newport Beach
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Alliance/Advocacy Organizations
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695.
CONGENITAL HYPERINSULINISM INTERNATIONAL
Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.
6467
Glen Ridge
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Birth Defects, Genetic Diseases Research
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696.
Charleys Fund Inc
Our goal is to cure Duchenne Muscular Dystrophy in time to save Charley's life and the lives of thousands of boys like him.
2900
Great Barrington
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Diseases, Disorders, Medical Disciplines N.E.C.
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697.
U R Our Hope
Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.
2304
AUSTIN
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Services to Promote the Independence of Specific Populations
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698.
COUNCIL ON AGING OF SOUTHWESTERN OHIO
Council on Aging is the Area Agency on Aging for southwestern Ohio including Butler, Clermont, Clinton, Hamilton and Warren counties.
6465
Blue Ash
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Medical Disciplines
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699.
Operation Backbone Inc
OneChiropractic: The organization defending Chiropractic around the world.
1900
Centreville
Hunters CMT4B3 Research Foundation Inc
Pioneering cutting edge scientific research to develop treatments for CMT4B3 patients and children with rare neuromuscular diseases.
645
Scarsdale
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Alliance/Advocacy Organizations
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701.
Loeys-Dietz Syndrome Foundation
The LDSF is a 501(c)3 non-profit organization organization dedicated to:--encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis and treatment of Loeys-Dietz syndrome--fostering research about Loeys-Dietz syndrome--providing a support network, for individuals, parents and families affected by Loeys-Dietz syndrome This March were celebrating 20 years since LoeysDietz Syndrome was first identified.
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Alliance/Advocacy Organizations
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702.
GENERATION PATIENT INC
Generation Patient facilitates events, online programs, and advocacy initiatives for young adults with chronic and rare conditions to ensure they have the opportunities and resources to thrive.
575
GREENWOOD







