Browse

Similar organisations to International Sacral Agenesis / Caudal Regression Association

Community Rebuilding
  • Nerve, Muscle, and Bone Diseases

  • 694.

CureDuchenne

We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.

Social Rank

23274

Location

Newport Beach

View
Community Rebuilding
  • Alliance/Advocacy Organizations

  • 695.

CONGENITAL HYPERINSULINISM INTERNATIONAL

Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.

Social Rank

6467

Location

Glen Ridge

View
Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 696.

Charleys Fund Inc

Our goal is to cure Duchenne Muscular Dystrophy in time to save Charley's life and the lives of thousands of boys like him.

Social Rank

2900

Location

Great Barrington

View
Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 697.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

Social Rank

2304

Location

AUSTIN

View
Community Rebuilding
  • Services to Promote the Independence of Specific Populations

  • 698.

COUNCIL ON AGING OF SOUTHWESTERN OHIO

Council on Aging is the Area Agency on Aging for southwestern Ohio including Butler, Clermont, Clinton, Hamilton and Warren counties.

Social Rank

6465

Location

Blue Ash

View
Community Rebuilding
  • Medical Disciplines

  • 699.

Operation Backbone Inc

OneChiropractic: The organization defending Chiropractic around the world.

Social Rank

1900

Location

Centreville

View
Community Rebuilding

Hunters CMT4B3 Research Foundation Inc

Pioneering cutting edge scientific research to develop treatments for CMT4B3 patients and children with rare neuromuscular diseases.

Social Rank

645

Location

Scarsdale

View
Community Rebuilding
  • Alliance/Advocacy Organizations

  • 701.

Loeys-Dietz Syndrome Foundation

The LDSF is a 501(c)3 non-profit organization organization dedicated to:--encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis and treatment of Loeys-Dietz syndrome--fostering research about Loeys-Dietz syndrome--providing a support network, for individuals, parents and families affected by Loeys-Dietz syndrome This March were celebrating 20 years since LoeysDietz Syndrome was first identified.

Location

View
Community Rebuilding
  • Alliance/Advocacy Organizations

  • 702.

GENERATION PATIENT INC

Generation Patient facilitates events, online programs, and advocacy initiatives for young adults with chronic and rare conditions to ensure they have the opportunities and resources to thrive.

Social Rank

575

Location

GREENWOOD

View