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Similar organisations to International Pnh Interest Group

Community Rebuilding
  • Medical Disciplines

  • 64.

Pediatric Neurotransmitter Disease Association Inc

The PND association is a disease organization representing children and families who are affected by a pediatric neurotransmitter disease.

Social Rank

200

Location

Farmingdale

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Community Rebuilding
  • Hospitals and Primary Medical Care Facilities

  • 65.

Center for Medical Technology Policy

Center for Medical Technology Policy Home of #GPC (Green Park Collaborative), a multi-stakeholder forum developing #CoreOutcomeSets for clinical trial design.

Social Rank

423

Location

Baltimore

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Community Rebuilding
  • Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

  • 66.

INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC

ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.

Location

Philadelphia

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Community Rebuilding
  • Cancer

  • 67.

Project 44 Inc

Saving lives by fostering a mainstream sense of moral obligation and willingness to support and join the bone marrow registry To raise awareness for the national bone marrow registry.

Social Rank

1000

Location

Indianapolis

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Community Rebuilding
  • Kidney

  • 68.

PKD Foundation

Dedicated to finding treatments and a cure for polycystic kidney disease (PKD).

Social Rank

45685

Location

Kansas City

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 69.

Friends of Nicer

NICER consortium brings together clinicians and researchers in hematology, immunology, rheumatology, ID and genetics NICER.

Social Rank

111

Location

Ann Arbor

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 70.

PBD Project

Our goal is to find a longterm solution for patients with Peroxisome Biogenesis Disorders.

Location

Bethesda

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 71.

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.

Social Rank

162

Location

SEATTLE

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Community Rebuilding
  • International Relief

  • 72.

FRIENDS OF IPWSO

Friends of IPWSO raises money to improve the lives of children and adults who are born with Prader-Willi Syndrome.

Social Rank

758

Location

Eden Prairie

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