Similar organisations to International Pnh Interest Group
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Fund Raising and/or Fund Distribution
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100.
National Children Leukemia Foundation Inc
To provide the cure for cancer and Leukemia Foundation Ways to be Healthier and Live Longer Learn Things on Improving Your Memory A powerful memory is contingent upon the health and energy of the mind.
Brooklyn
AS ONE FOUNDATION
THE MISSION OF THE AS ONE FOUNDATION IS TO EDUCATE AND INCREASE AWARENESS OF SICKLE CELL TRAIT WHILE ENCOURAGING YOUTH TO ACHIEVE THEIR DREAMS IN THE FACE OF LIFE'S CHALLENGES Celebrating The Heart Of Devaughn 19822001 Welcome To The As One Foundation The As One Foundation is a global leader in hemoglobinopathy education.
Katy
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Single Organization Support
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102.
American Society of Pediatric Nephrology Foundation
EXPANDING RESEARCH AND EDUCATIONAL PROGRAMS ASPN MISSION To promote optimal care for children with kidney disease through advocacy education and research and to disseminate advances in clinical practice and scientific investigation.
McLean
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Medical Specialty Research
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103.
Global Society of Rare Genitourinary Tumors Inc
International Society dedicated to improving the care of rare GU tumors through cutting edge science and the promotion of education.
894
Tampa
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Alliance/Advocacy Organizations
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104.
Sickle Forward
Sickle Forward is dedicated to transforming the lives of individuals affected by Sickle Cell Disease (SCD) in low- and middle-income countries by championing access to timely diagnosis and basic treatment.
Greenville
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Specifically Named Diseases Research
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105.
Hae International
HAEi is the global umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups.
1087
Fairfax
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Alliance/Advocacy Organizations
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106.
Ctx Alliance NFP
Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.
70
Lansdale
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Nonmonetary Support N.E.C.*
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107.
SPOONBILL FOUNDATION
Finding a solution for PKAN Spoonbill Foundation and our sister organization Stichting Lepelaarwere founded with the goal to discover develop and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community as swiftly as possible and at the lowest cost.
Portland
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Fund Raising and/or Fund Distribution
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108.
NORTH CAROLINA RARE DISEASE
Rare Disease Innovations Institute Our Mission RDII is a global nonprofit focused on educating engaging and equipping the rare disease community.
DURHAM

