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Similar organisations to International Pnh Interest Group

Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 100.

National Children Leukemia Foundation Inc

To provide the cure for cancer and Leukemia Foundation Ways to be Healthier and Live Longer Learn Things on Improving Your Memory A powerful memory is contingent upon the health and energy of the mind.

Location

Brooklyn

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Community Rebuilding

AS ONE FOUNDATION

THE MISSION OF THE AS ONE FOUNDATION IS TO EDUCATE AND INCREASE AWARENESS OF SICKLE CELL TRAIT WHILE ENCOURAGING YOUTH TO ACHIEVE THEIR DREAMS IN THE FACE OF LIFE'S CHALLENGES Celebrating The Heart Of Devaughn 19822001 Welcome To The As One Foundation The As One Foundation is a global leader in hemoglobinopathy education.

Location

Katy

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Community Rebuilding
  • Single Organization Support

  • 102.

American Society of Pediatric Nephrology Foundation

EXPANDING RESEARCH AND EDUCATIONAL PROGRAMS ASPN MISSION To promote optimal care for children with kidney disease through advocacy education and research and to disseminate advances in clinical practice and scientific investigation.

Location

McLean

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Community Rebuilding
  • Medical Specialty Research

  • 103.

Global Society of Rare Genitourinary Tumors Inc

International Society dedicated to improving the care of rare GU tumors through cutting edge science and the promotion of education.

Social Rank

894

Location

Tampa

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 104.

Sickle Forward

Sickle Forward is dedicated to transforming the lives of individuals affected by Sickle Cell Disease (SCD) in low- and middle-income countries by championing access to timely diagnosis and basic treatment.

Location

Greenville

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Community Rebuilding
  • Specifically Named Diseases Research

  • 105.

Hae International

HAEi is the global umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups.

Social Rank

1087

Location

Fairfax

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 106.

Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

Social Rank

70

Location

Lansdale

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Community Rebuilding
  • Nonmonetary Support N.E.C.*

  • 107.

SPOONBILL FOUNDATION

Finding a solution for PKAN Spoonbill Foundation and our sister organization Stichting Lepelaarwere founded with the goal to discover develop and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community as swiftly as possible and at the lowest cost.

Location

Portland

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 108.

NORTH CAROLINA RARE DISEASE

Rare Disease Innovations Institute Our Mission RDII is a global nonprofit focused on educating engaging and equipping the rare disease community.

Location

DURHAM

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