HEREDITARY ANGIOEDEMA ASSOCIATION INC

The US HAEA is a non-profit advocacy and research organization serving people with HAE.

• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 65.

INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC

ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.

HUNTINGTONS DISEASE YOUTH ORGANIZATION

An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.

WORLD CRANIOFACIAL FOUNDATION

We are the WorldCF, Healing Children's Faces Welcome.

Who Is Carter Foundation Inc

Nonprofit supporting families of children with brain injury and other neurological conditions July The conversation around brain injury--whether among physicians, families, communities, or society as a whole--is often limiting.

Texas Neurofibromatosis Foundation

We’re a community of NF patients, parents, doctors and advocates who want to listen, support or help you as we can.

• Specifically Named Diseases Research

• 70.

THE FOCUS FOUNDATION INC

OUR FOCUS:Helping children who have* X & Y Variations* Dyslexia * DyspraxiaEarly Identification + Tar Early Awareness Detection Treatment for X Y Chromosomal Variation Disorders X Y Chromosomal Disorders 47 XXY 47 XYY 47 XXX Learn more about them.

• Specifically Named Diseases

• 71.

CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.

• Specific Organ Research

• 72.

L-CMD RESEARCH FOUNDATION

L-CMD Research Foundation's purpose is to translate available scientific technologies into treatment Today we are one step closer to a tomorrow without LMNArelated congenital muscular dystrophy.