• Private Operating Foundations

• 118.

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

• Public Foundations

• 119.

Cole Parker Randall Foundation

To raise awareness of and contribute to ongoing research in pursuit of a cure of Spinal Muscular Atrophy, and to provide support to families with children facing difficult medical challenges.

• Epilepsy

• 120.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

• Fund Raising and/or Fund Distribution

• 121.

Magical Mila Foundation

🦋 Dedicated to the beautiful life and memory of Mila Gray Roomberg 💕 🦋 Raising awareness of NF1 and high blood pressure in infants and toddlers #BPUNDER3 *Dedicated to the beautiful life and memory of Mila Gray Roomberg *Raising awareness of NF1 and high blood pressure in infants and toddlers FOUNDATION FUNDS THE "BP UNDER 3 PROGRAM AT CHILDRENS HOSPITAL OF PHILADELPHIA CLINICAL TRAL TO VALIDATE BLOOD PRESSURE TECHNOLOGY IN CHILDREN UNDER 3 YEARS OLD.

The LENN Foundation

The LENN Foundation is a 501(c)(3) charity that provides grant opportunities for children with CP to receive the pediatric therapies they need to thrive.

• Alliance/Advocacy Organizations

• 123.

Allo Hope Foundation

Our mission is to prevent any harm, stillbirth or infant death caused by #Alloimmunization and Hemolytic Disease of the Fetus and Newborn (#HDFN) Our mission is to prevent harm, stillbirth and infant death caused by alloimmunization and HDFN.

• Specifically Named Diseases

• 124.

NR2F1 FOUNDATION

Empowering families and individuals living with rare #NR2F1 mutations through education, awareness and research.

• Alliance/Advocacy Organizations

• 125.

Lissencephaly Foundation Inc

Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material.

• Cancer Research

• 126.

TEAM BRADLEY BEAR FOUNDATION INC

Team Bradley Bear Foundation was created in honor of Bradley Cassavant, who lost his life to a rare brain tumor at the young age of 13 months.