Alport Syndrome Foundation Inc

Improving patient lives through education, empowerment, advocacy, and research with a vision to conquer #Alportsyndrome.

NEW ENGLAND CONNECTION FOR PKU AND ALLIED DISORDERS INC

Volunteer, nonprofit, striving to be a supportive resource for New England area families and friends affected by inborn errors of metabolism, such as PKU.

• Management & Technical Assistance

• 66.

Institute for Family-Centered Care Inc

Advancing the understanding and practice of patient- and family-centered care in all health care settings.

Cystic Fibrosis Research Institute

CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness.

• Kidney

• 68.

PKD Foundation

Dedicated to finding treatments and a cure for polycystic kidney disease (PKD).

• Patient Services�Entertainment, Recreation

• 69.

Peld Foundation

A charity dedicated to serving pediatric liver disease patients Who We Are Helping families affected by pediatric liver disease Donate To help a child like Adeline click below.

Malan Syndrome Foundation Inc

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

• Specifically Named Diseases

• 71.

Niemann-Pick Childrens Fund

Niemann-Pick Children's Fund, Inc. was organized in December of 2008 in order to raise awareness of Niemann-Pick Disease Type C and its affect on families in America; to raise money to promote research to find treatments or a cure for Niemann-Pick Disease Type C: and to provide support to individuals and families affected by this disease through existing channels.

• Specifically Named Diseases

• 72.

The Kennedy Ladd Foundation, Inc.

The Kennedy Ladd Foundation is committed to ending the suffering caused by MPS1, a progressive and life-threatening disease.