Rare and Undiagnosed Network Inc

RUN for those affected with rare/undiagnosed conditions: Raise awareness.

• Birth Defects, Genetic Diseases Research

• 65.

Sanfilippo Hope Initiative

Jarod and Caleb are brothers who suffer from an ultra-rare disease called Sanfilippo Syndrome.

• Specifically Named Diseases Research

• 66.

Cure Szt2

Cure SZT2 is a non-profit organization dedicated to families affected by the genetic mutation SZT2.

Astro Kidz, Inc.

Our mission is to empower families with the tools and knowledge to help their children to thrive and reach for the stars by providing education, social groups, and networking.

• Alliance/Advocacy Organizations

• 68.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

• Alliance/Advocacy Organizations

• 69.

Lissencephaly Foundation Inc

Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material.

• Birth Defects, Genetic Diseases Research

• 70.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

• Fund Raising and/or Fund Distribution

• 71.

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

Fighting for children and families affected by 4H Leukodystrophy.

• Specifically Named Diseases

• 72.

RAISIN FOR RETT FOUNDATION

We fund multiple high-quality organizations working on behalf of those with Rett Syndrome and related disorders.