• Nerve, Muscle, and Bone Diseases

• 109.

THE XLH NETWORK INC

The Official Facebook Page of The XLH Network, Inc.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 110.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

• Neurology, Neuroscience

• 111.

PCDH19 Alliance

Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy.

Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

PRADER-WILLI CALIFORNIA FOUNDATION

Our vision is a A Full Life Without Limits for everyone with Prader-Willi syndrome.

WIEDEMANN-STEINER SYNDROME FOUNDATION

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS.

• Birth Defects, Genetic Diseases

• 115.

17q12 Foundation

Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research.

• Specifically Named Diseases

• 116.

NR2F1 FOUNDATION

Empowering families and individuals living with rare #NR2F1 mutations through education, awareness and research.

• Alliance/Advocacy Organizations

• 117.

KIF1A.ORG

We connect families affected by KIF1A and relentlessly work to accelerate research.