The LAM Foundation

Delivering facts about #LAM #RareDisease and The LAM Foundation.

• Specifically Named Diseases Research

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GRACE SCIENCE FOUNDATION

We are changing how scientific research is done.

• Epilepsy

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Cure Ahc Foundation

Alternating Hemiplegia of Childhood (AHC) is a complex, ultra-rare neurological disease.

Fight for Phoebe Inc

Our eight year old daughter Phoebe has been diagnosed with Hemophagocytic Lymphohistiocytosis (HLH), a life-threatening immunodeficiency.

• Nerve, Muscle, and Bone Diseases

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The Lilly and Blair Foundation

The Lilly and Blair Foundation is dedicated to improving the lives of children battling de novo spastic paraplegia - a swift and severe neurodegenerative disease - through collaboration with top scientists and funding of promising research.

Rare New England Inc

Rare New England's Mission is to bring together New England patients and families touched by rare and complex disorders.

• Birth Defects, Genetic Diseases Research

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Rare Olive Org Inc

Our mission is to push forward the scientific understanding and treatment options for a rare neurodevelopmental disorder.

• Patient Services�Entertainment, Recreation

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HAVEN EILEEN KILEY FOUNDATION INC

501c3 helping children sick or in need and the families and facilities that care for them Haven’s Foundation is a 501(c) 3 non-profit organization founded in 2016, after our precious daughter, Haven Eileen, lost her life to a genetic disease.

• Birth Defects, Genetic Diseases Research

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THE 11Q RESEARCH AND RESOURCE GROUP INC

home lifesaving protocols who we are frequently asked questions medical support donate More 11qRESEARCH RESOURCE GROUP WELCOMES YOU WHO WE ARE The mission of this website is to provide support and organizational efforts for the parents as well as friends and family of all children with 11th chromosome abnormalities including deletions monosomy duplications trisomy and translocations.