• Private Independent Foundations

• 46.

Julia Cekala Char Fndn Tr

Home About Julia Julias Garden Events Support Contact Us OnMay 23rd 2003 Julia passed away at Bostons ChildrensHospital.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 47.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

Rare and Undiagnosed Network Inc

RUN for those affected with rare/undiagnosed conditions: Raise awareness.

• Fund Raising and/or Fund Distribution

• 49.

BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION

Batten Disease Support, Research, & Advocacy.

• Fund Raising and/or Fund Distribution

• 50.

Gardaccess Inc

Accelerating access to quality healthcare Addressing Unmet Needs in Rare Diseases Access to lifesaving medicine programs in low and middleincome countries LMIC presents a significant unmet need for patients living with rare disorders.

Petronille Healthy Society

One of our most sacred beliefs is that every life matters.

• Alliance/Advocacy Organizations

• 52.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

• Fund Raising and/or Fund Distribution

• 53.

Lailas Gift

A nonprofit dedicated to celebrating the special needs community, one gift at a time.

• Cancer

• 54.

VIOLET FOUNDATION FOR PEDIATRIC BRAIN

We are fighting for better treatments for pediatric brain cancers.