• Public Foundations

• 487.

Sunbeam Foundation

Fighting Rare and Underfunded Pediatric Cancer Our purpose is to identify and support cuttingedge research aimed at finding a cure for Ewings Sarcoma and other forms of pediatric bone cancer.

AMERICAN EPILEPSY SOCIETY

American Epilepsy Society We are a community of professionals engaged in the understanding diagnosis study prevention treatment and cure with the goal of improving outcomes for persons with epilepsy.

• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 489.

Proteus Syndrome Foundation

The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research.

• Specifically Named Diseases

• 490.

Dyslexia Services Foundation

Dyslexia Evaluation Dyslexia Treatment Dyslexia Awareness The Dyslexia Services Foundation provides researchbased professional evaluation and treatment for lowincome children with dyslexia.

• Private Grantmaking Foundations

• 491.

The Hickey Family Foundation

through outreach projects that address medical social educational andor training needs of at risk youth already conceived or underway at universities medical centers or medical research institutions with the potential to positively impact or accelerate vital breakthroughs by financing the establishment of medical training centers or clinics where no or inadequate medicine exists Who We Are The Hickey Family Foundation HFF is a 501c3 Trust.

• Nonmonetary Support N.E.C.*

• 492.

Curedrpla Inc

I’m a parent advocate for DRPLA, a rare genetic disease.

• Birth Defects, Genetic Diseases Research

• 493.

The Kat6a Foundation Inc

We support individuals who are living with KAT6A and KAT6B syndromes around the world.

• Birth Defects, Genetic Diseases

• 494.

n-Lorem Foundation

Discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life Creating a better future for nano-rare, one patient at a time.

MUSCULAR DYSTROPHY FAMILY

The Muscular Dystrophy Family Foundation uses the power of giving to increase the quality of life and independence of people with muscular dystrophy—and empower their families—through advocacy, education, and financial assistance Living with a neuromuscular disease means facing new challenges every day.