• Public Foundations

• 514.

Travis Roy Foundation

TRF is dedicated to enhancing the life of spinal cord injured individuals & families, resulting in self-reliance & the ability to be as independent as possible.

• Alliance/Advocacy Organizations

• 515.

PCD KS FOUNDATION

Working together to find a cure and improve care for those with ciliary disorders and their families by increasing awareness, research and support.

• Specifically Named Diseases

• 516.

SCIboston, Inc.

Reach, Inspire, Support, Empower individuals and families affected by life altering spinal cord injur The mission of SCIboston is to reach individuals and families affected by spinal cord injury and disease.

NATIONAL PKU ALLIANCE INC

The mission of the National PKU Alliance is to improve the lives of individuals with PKU and pursue a cure.

• Specifically Named Diseases

• 518.

USHER 2020 FOUNDATION INC

Bringing therapies into clinical trials for those losing vision due to Usher Syndrome and retinitis pigmentosa.

• Management & Technical Assistance

• 519.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Fund Raising and/or Fund Distribution

• 520.

The Poetic Foundation Inc

The Poetic Foundations' mission is to promote the early clinical development of promising therapies for the treatment of children, adolescents and young adults with cancer and related disorders.

United MSD Foundation

Our mission is simple, yet powerful: To cure Multiple Sulfatase Deficiency.

• Patient Services�Entertainment, Recreation

• 522.

HLH Heroes Foundation Not for Profit

"NO ONE FIGHTS ALONE" The mission of HLH Heroes Foundation is to provide support to individuals and families impacted by HLH.