• Fund Raising and/or Fund Distribution

• 397.

Renu Syndrome United

ReNU Syndrome Variants in RNU42 Uncovered as One of the Most Prevalent Causes of Neurodevelopmental Disorders Discovery Renews Hope for Affected Families Worldwide Characteristics may include Developmental Motor and Intellectual Delays Absent or Delayed Speech and Language Seizures Brain Abnormalities Small Head Size Distinct Facial Features Low Muscle Tone and Drooling Autism Spectrum Disorder Short Stature BoneSkeletal Anomalies Vision Issues and more More Information Big thanks to the researchers clinicians geneticists in these articlesfor this longawaited revelation.

• Birth Defects, Genetic Diseases

• 398.

Pku Nowrthwest Alliance

The PKU Northwest is a non-profit 501c(3) that organizes annual events for the PKU in the PNW.

The Foundation for Peripheral Neuropathy

Improving lives of those with PN via education+awareness and pursuing advocacy+lobbying+biobank growth+research for better treatments, one day, cures Our purpose: to improve the lives of patients living with peripheral neuropathy Our mission is to dramatically improve the lives of people living with peripheral neuropathy by: -Serving as the premier resource of information for patients, their families and healthcare providers -Accelerating a cure for peripheral neuropathies -Funding collaborative efforts of leading scientists -Raising awareness of peripheral neuropathy Our Purpose We strive to improve the lives of those affected by peripheral neuropathy through awareness education advocacy and research to advance the discovery of new therapies and cures.

LIVE RHYSSTRONG FOUNDATION

Our goal is to help the Spinal Muscular Atrophy community's efforts towards research, family support and awareness of the #1 genetic killer of infants.

CureGRIN Foundation

CureGRIN is a parent-run foundation committed to improving the lives of people living with GRI disorder.

• Kidney

• 402.

Wipe Out Wilms

WipeOutWilms Home Golf Outing Sponsors Our Story About Us History Supporting research to Wipe Out Wilms Tumors 2025 Wipe Out Wilms Golf Outing Saturday July 19 2025 130PM Shotgun Start Glenview Golf Course Cincinnati OH 4person scramble Dinner following golf est.

• Fund Raising and/or Fund Distribution

• 403.

Undiagnosed Diseases Network Foundation (UDNF)

Improving access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions.

Meridian Pediatric Surgical Associates PC

Keep getting better. Hackensack Meridian is a leading not-for-profit & the most comprehensive health care network in NJ.

• Fund Raising and/or Fund Distribution

• 405.

Tango2 Research Foundation Incorporated

Our mission is to lead the way in finding a cure for TANGO2 related disease.