• Birth Defects, Genetic Diseases Research

• 451.

Canavan Research Foundation, Inc.

Our mission is to fund and support research to cure Canavan Disease and apply these findings to create therapies for other genetic brain diseases.

National Tuberous Sclerosis Association Inc

The TSC Alliance is a source of hope and support for people with tuberous sclerosis complex so they can live their fullest lives.

• Fund Raising and/or Fund Distribution

• 453.

Andy Derr Foundation for Kidney Cancer Research

Our family would like to honor Andy's dream of advancing kidney cancer research, educating patients and their families, and supporting patient advocacy.

• Specifically Named Diseases

• 454.

Watch 4 Wegeners

It could save a life. Home Sarahx27s Story About Our Board Contact Us Run To Raise Testimonials More Watch 4 Wegeners It Could Save a Life Our daughter Sarah River Whitmire was a college student in pharmacy school when she died suddenly at age 20 from complications of undiagnosed Granulomatosis with Polyangiitis GPA also known as Wegener39s Disease a rare autoimmune disease that no one knew she had.

• Fund Raising and/or Fund Distribution

• 455.

Collagen 6 Research Charity Inc

Raising money to cure Collagen VI-related dystrophy, a rare congenital muscular dystrophy.

Sickle Cell Disease Association of America MI Chapter Inc

Education, genetic counseling, advocacy, follow-up laboratory testing, case management, events, medical referrals, summer camp, and more.

• Single Organization Support

• 457.

CY-HOPE INC

Cy-Hope is Making Life Better for Kids.

• Fund Raising and/or Fund Distribution

• 458.

Team Carone Foundation

A community of family, friends, and supporters dedicated to helping @RickCarone beat Stage IV Pancreatic Cancer.

• Birth Defects, Genetic Diseases

• 459.

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.