Art and Science Collaborations Inc

Founded in 1908, the ASCI is home to 3,000+ physician-scientists active across academic medicine and industry.

Canavan Foundation, Inc.

CANAVAN FOUNDATION Preventing Childhood Genetic Disease Through Education We have a blog.

• Public Health Programs

• 390.

Joshua Joel Sma Life Foundation

Welcome to Joshua Joel SMA Life Inc.

• Fund Raising and/or Fund Distribution

• 391.

Meds4Kidz Foundation Inc

Meds4kidz Foundation is a non-profit organization focused on helping sick children in Boliva get the medicine they need.

• Patient Services�Entertainment, Recreation

• 392.

Santonio Holmes Iii & Long Foundation Inc

TO HELP IN THE RESEARCH AND FINDING A CURE FOR SICKLE CELL DISEASE AND TO ASSIST FAMILIES THAT HAVE BEEN AFFECTED BY SCD III Long Foundation ABOUT THE FOUNDATION MISSION Founded by Santonio Holmes in the fall of 2011 the mission of theIII Long Foundation is to raise awareness to help fight Sickle Cell Disease SCD and provide financial support and treatment options for families affected bythe disease.

• Private Grantmaking Foundations

• 393.

Wallace Beeson Foundation Inc

A 501(c) founded in 2017 to raise money for research in rare Neurogastrointestinal & Motility Disease Home About Research Our Team More JOIN OUR FIGHT TOMAKE RARE KNOWN Funding Research for Rare Neurogastrointestinal Motility disorders YOUR DONATION FUNDS A DESPERATE NEED IN RESEARCH HOW WE STARTED From being a healthy 15yearold competitive swimmer to having to fight for herlife almost overnight Wallacesaw first hand the effect a rare condition has on someone.

Rarekc Foundation

Our mission is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community.

• Professional Societies & Associations

• 395.

Pharmacogenomics Research Network Inc

WildApricot by @Personifycorp helps over 32,000 membership organizations with an all-in-one solution.

• Birth Defects, Genetic Diseases

• 396.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.