Similar organisations to Dion Foundation for Children with Rare Diseases Inc
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Neurology, Neuroscience
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379.
American Association of Neuropat
The official twitter account of the American Association of Neuropathologists Professional society of composed of physicians and scientists involved in research, training, and the clinical practice of neuropathology.
13246
Littleton
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Neurology, Neuroscience
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380.
GLOBAL NEUROCARE
Our mission is to improve neurological care in developing countries.
San Antonio
Ellie Ruby Foundation Inc
Our mission is to bring smiles and support to families battling pediatric cancer Our mission is to bring smiles and support to families battling pediatric cancer.
659
Oakhurst
Wings for Ewing Sarcoma, Inc.
Non-profit Organization Mission: "Finding the cure to Ewing Sarcoma and empowering all types of childhood cancer patients, children and adults 18+" Wings for Ewing Sarcoma was founded to help find a cure for Ewing Sarcoma (ES), a pediatric bone cancer, by fundraising to: raise public awareness; make scientific ES research grants; and planning activities/retreats for life enriching patient experiences To help find a cure for Ewing Sarcoma (ES), a pediatric cancer, by fundraising to: raise public awareness by distributing facts; make scientific research grants for ES research; and planning activities and retreats for life enriching experiences to those fighting pediatric cancers.
1251
Ardsley
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Alliance/Advocacy Organizations
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383.
Duchenne Brothers Foundation
Golfing for Wheelchair Soccer Registration Our Mission Our mission is to find a cure and improve the quality of life for all that suffer from Duchenne Muscular Dystrophy.
Norco
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Birth Defects, Genetic Diseases
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384.
Green Ivy Health Inc
WE HELP PATIENTSFIGHT vEDS FIGHT vEDS is a nonprofit organization dedicated to fighting and finding a treatment for vascular EhlersDanlos Syndrome.
Ballston Spa
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Education N.E.C.
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385.
Reboot Rx Inc
Tech nonprofit fast-tracking the development of affordable cancer treatments using repurposed generic drugs and AI technology.
286
Winchester
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Fund Raising and/or Fund Distribution
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386.
Shanerock
Shanerock provides care, resources, and financial support to families that are battling pediatric cancer.
CLEVELAND
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Birth Defects, Genetic Diseases
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387.
BPAN WARRIORS
Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.
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BOCA RATON





