• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 370.

LYMPHATIC MALFORMATION INSTITUTE

TO IDENTIFY, ORGANIZE AND FUND RESEARCH AND STUDIES TO ADVANCE THE UNDERSTANDING OF THE HUMAN LYMPHATIC SYSTEM AND ITS MALFORMATIONS LMI Our Impact Research Funding To Date 8000000 in research grants Research Publications 20 publications resulting from 45 funded projects and presentations conducted by 36 investigators Research Network 40 investigatorsover 10 countries represented Complex Lymphatic Anomaly CLA is an umbrella term encompassing four overlapping but distinct rare diseases of the lymphatic system Gorham Stout Disease GSD Generalized Lymphatic Anomaly GLA Kaposiform Lymphangiomatosis KLA and Central Conducting Lymphatic Anomaly CCLA.

• Birth Defects, Genetic Diseases Research

• 371.

Cure CMD

Cure CMD’s mission is to advance research toward treatments for congenital muscular dystrophies and empower those living with CMD.

Hereditary Disease Foundation

The official Twitter feed of the Hereditary Disease Foundation.

• Fund Raising and/or Fund Distribution

• 373.

HUNTER SYNDROME FOUNDATION

The Hunter Syndrome Foundation is a 501(c)3 non-profit corporation with a mission to fund potential therapies that will ultimately find a cure for this disorder.

• Specifically Named Diseases

• 374.

CADASIL Association

cureCADASIL is a non-profit organization committed to curing #CADASIL and improving the quality of life for those affected by this genetic disease.

• Professional Societies & Associations

• 375.

Tennessee Genetic Counselors Association

The Tennessee Genetic Counselors Association is a professional organization that advocates for the genetic counseling profession and genetic services in TN.

Prader Willi Utah Association Inc

The mission of the Utah Prader-Willi Syndrome Association is to enhance the lives of individuals and families affected by Prader-Willi syndrome.

• Alliance/Advocacy Organizations

• 377.

The Shank2 Foundation

To improve the quality of life for individuals affected by SHANK2 disorders.

Sickle Cell Disease Association of America MI Chapter Inc

Education, genetic counseling, advocacy, follow-up laboratory testing, case management, events, medical referrals, summer camp, and more.