• Nerve, Muscle, and Bone Diseases

• 352.

Myotonic Dystrophy Foundation

The world's largest patient organization focused solely on #myotonicDystrophy.

• Specifically Named Diseases Research

• 353.

Matthew and Andrew Akin Foundation

THE MISSION OF THE MATTHEW AND ANDREW AKIN FOUNDATION IS TO SUPPORT THE WORLD-RENOWNED EXPERTS AT THE HLH CENTER OF EXCELLENCE AT CINCINNATI CHILDREN'S HOSPITAL AND THEIR CORE PRIORITIES OF RESEARCH, EDUCATION AND FAMILY SUPPORT.

• Alliance/Advocacy Organizations

• 354.

Alpha 1 Resource Group Inc

At Alpha1 Resource Group (A1R) we strive to enlighten, inspire and improve the quality of life for people living with Alpha-1 Antitrypsin Deficiency and their families OUR MEETINGS Advocate Support Educate Advise Collaborate OUR EVENTS Reaching out to touch the lives of others OUR MEMBERS Meet the people who make our mission possible Who We are.

• Birth Defects, Genetic Diseases

• 355.

Irf2Bpl Foundation

Raising Awareness and Research Funds for IRF2BPLDisorder This website provides the information onIRF2BPLrelated disorders for patients family members physicians and biomedical scientists working all together to solve the medical mystery on IRF2BPL.

• Cancer

• 356.

Hereditary and Genetic Cancer Foundation Inc

support when you need it most Resources for Individuals and Families with Cancer Causing Genetic Conditions support when you need it most Resources for Individuals and Families with Cancer Causing Genetic Conditions FALL FUNDRAISERTuesday October 10 2023 Our organization is committed to improving the lives of those in need and to support caregivers patients and families.

• Alliance/Advocacy Organizations

• 357.

Lissencephaly Foundation Inc

Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material.

Garage 10

An action network dedicated to helping those with rare disease be able to visit the medical professionals in times of need.

• Fund Raising and/or Fund Distribution

• 359.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.

• Counseling Support Groups

• 360.

Ben's Friends

#BensFriends is a network of #patientcommunities for people with #raredisease and #chronicillness.