Cornelia de Lange Syndrome Foundation, Inc.

Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.

• Fund Raising and/or Fund Distribution

• 362.

Lauri Strauss Leukemia Foundation Inc

THE FOUNDATION IS DEDICATED TO FINDING A CURE FOR LEUKEMIA AND TO SUPPORTING BONE MARROW DONOR DRIVES AND DOES SO BY FUNDING AND PROVIDING GRANTS AND HONORARIUMS TO INDIVIDUAL RESEARCHERS AT MEDICAL INSTITUTIONS.

• Private Operating Foundations

• 363.

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

• Patient Services�Entertainment, Recreation

• 364.

EB Hope Foundation

The foundation exists to promote awareness of Epidermolysis Bullosa (EB) and generate monetary support for research and the care of EB patients.

Solve ME/CFS Initiative, Inc.

Making ME/CFS, Long Covid & post-infection diseases widely understood, diagnosable, & treatable.

• Specifically Named Diseases Research

• 366.

Countdown for A Cure Inc

Countdown For A Cure is a collaborative force dedicated to accelerating mitochondrial research to advance the field of mitochondrial medicine, focusing on conditions and diseases stemming from cellular energy dysfunction.

• Fund Raising and/or Fund Distribution

• 367.

Beta-Spectrin 1 Sptbn1 Foundation Inc

Providing support to those effected by SPTBN1 For questions or to further connect, please reach us at SPTBN1foracure@gmail.

• Fund Raising and/or Fund Distribution

• 368.

Tough Genes Inc

Currently, there is no treatment for IRF2BPL-Related Disorder.

• Digestive Diseases, Disorders

• 369.

International Association for Muscle Glycogen Storage Disease

IamGSD aims to enhance the quality of life of people affected by muscle glycogen storage disease through advocacy, support, and research.