• Fund Raising and/or Fund Distribution

• 406.

Lupus Research Institute Inc

The Lupus Research Alliance is the world’s largest private funder of lupus research.

AS ONE FOUNDATION

THE MISSION OF THE AS ONE FOUNDATION IS TO EDUCATE AND INCREASE AWARENESS OF SICKLE CELL TRAIT WHILE ENCOURAGING YOUTH TO ACHIEVE THEIR DREAMS IN THE FACE OF LIFE'S CHALLENGES Celebrating The Heart Of Devaughn 19822001 Welcome To The As One Foundation The As One Foundation is a global leader in hemoglobinopathy education.

Phelan McDermid Syndrome Foundation

Official site of the Phelan-McDermid Syndrome Foundation.

• Epilepsy

• 409.

LOGAN JETT RESEARCH FOUNDATION INC

By building connections within the epilepsy community, offering hope to families affected by this condition and raising the necessary funds, our mission is to have a positive impact on the lives of everyone who is touched by epilepsy.

• Specifically Named Diseases

• 410.

Rivere Foundation

A blog for better blood sugars. A charity to challenge the establishment.

• Professional Societies & Associations

• 411.

Sturge-Weber Foundation

Embracing our uniqueness. We may be rare, but we're also one in a million.

• Fund Raising and/or Fund Distribution

• 412.

Chloe Strong Foundation

The Chloe Strong Foundation The Chloe Strong Foundation is a 501c3 nonprofit organization that exists to improve the quality of life for those that struggle with the rare neurological disorder Rett Syndrome by providing financial assistance support and prayers.

• Birth Defects, Genetic Diseases

• 413.

American Board of Medical Genetics and Genomics Inc

The mission of the ABMGG is to serve the public and the medical profession by promoting and assuring standards of excellence in medical genetics.

• Fund Raising and/or Fund Distribution

• 414.

WARDS FOUNDATION

Save the Date for A Rare Affair Saturday February 10 2024 at Charlotte Country Club A unique wine experience with access to rare varietals vineyards and vintages benefiting families facing rare diseases.