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Similar organisations to Abetalipoproteinemia and Related Disorders Foundation

Community Rebuilding
  • Specifically Named Diseases

  • 37.

HEMOCHROMATOSIS INFORMATION SOCIETY

The Hemochromatosis Information Society is a nonprofit organization providing valuable information to patients and physicians concerning hereditary hemochromatosis.

Social Rank

1300

Location

Gaithersburg

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Community Rebuilding
  • Cancer

  • 38.

FRIENDS OF ESSENTIAL THROMBOCYTHEMIA INC

To raise funds for the rare blood cancer/bone marrow disorder known as Essential Thrombocythemia (ET.

Social Rank

1400

Location

West Palm Beach

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Community Rebuilding
  • Professional Societies & Associations

  • 39.

Genetic Metabolic Dietitians International Inc

Home GMDI Searchable Member Directory Now Live .

Location

Hillsborough

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 40.

Foundation for Children With Atypical Hus

Official page of The Atypical HUS Foundation.

Social Rank

2900

Location

Penfield

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 41.

Ipex Foundation

The IPEX Foundation’s purpose is to improve the treatment, quality of life and the long term outlook for children and adults living with IPEX syndrome through research, support, education and advocacy to families and patients.

Location

Millstadt

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Community Rebuilding

CELIAC DISEASE FOUNDATION

Official account for the Celiac Disease Foundation, the leading global public voice for celiac disease.

Social Rank

142565

Location

Woodland Hills

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Community Rebuilding
  • Diseases of Specific Organs

  • 43.

NATIONAL FOUNDATION FOR CELIAC

Committed to finding treatments and a cure for celiac disease.

Social Rank

181436

Location

AMBLER

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Community Rebuilding
  • Specifically Named Diseases

  • 44.

THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION

Thrive with Pyruvate Kinase Deficiency Organization connects treatment support, increased social awareness and advocacy to communities affected by PK deficiency.

Social Rank

242

Location

Bloomington

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Community Rebuilding
  • Kidney

  • 45.

INTERNATIONAL SOCIETY OF GLOMERULAR

THE INTERNATIONAL SOCIETY OF We envision a future where all people with glomerular kidney disease can access accurate early diagnosis and suitable treatment to preserve the health of their kidneys.

Location

KING OF PRUSSIA

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