• Alliance/Advocacy Organizations

• 91.

Alpha 1 Resource Group Inc

At Alpha1 Resource Group (A1R) we strive to enlighten, inspire and improve the quality of life for people living with Alpha-1 Antitrypsin Deficiency and their families OUR MEETINGS Advocate Support Educate Advise Collaborate OUR EVENTS Reaching out to touch the lives of others OUR MEMBERS Meet the people who make our mission possible Who We are.

• Philanthropy/Charity/ Voluntarism Promotion (General)

• 92.

Elis Lionheart Foundation

Offering aid & building a community of support for families affected by Congenital Heart Defects CHD Elix27s LionHeart Foundation HLHS Events Sponsorships More We AreEli39s LionHeart Foundation Offering aid building a community of support for families affected by CHD Congenital Heart Defects.

• Birth Defects, Genetic Diseases Research

• 93.

Fam177a1 Research Fund

Founder and President, FAM177A1 Research Fund The mission of the FAM177A1 Research Fund is to improve the lives of those affected by FAM177A1 Associated Disorder through research and development of transformative therapies.

• Birth Defects, Genetic Diseases Research

• 94.

Chronic Lymphocytic Leukemia Foundation

LEUKEMIA RESEARCH AND EDUCATION Our Mission Chronic Lymphocytic Leukemia is the most common form of adult Leukemia in the United States and the western world.

• Alliance/Advocacy Organizations

• 95.

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

• Specifically Named Diseases

• 96.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

The Vision of Children Foundation

Dedicated to finding a cure for hereditary childhood blindness and vision disorders.

• Patient Services�Entertainment, Recreation

• 98.

Idefine Inc

IDefine is committed to identifying life-changing treatments & cures and building community for those with Kleefstra Syndrome and intellectual disabilities.

• Specifically Named Diseases Research

• 99.

THE FOCUS FOUNDATION INC

OUR FOCUS:Helping children who have* X & Y Variations* Dyslexia * DyspraxiaEarly Identification + Tar Early Awareness Detection Treatment for X Y Chromosomal Variation Disorders X Y Chromosomal Disorders 47 XXY 47 XYY 47 XXX Learn more about them.