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Similar organisations to NOONAN SYNDROME FOUNDATION

Community Rebuilding
  • Alliance/Advocacy Organizations

  • 334.

Colon Cancer Alliance for Research and Education for Lynch Syndrome

The non-profit dedicated to Lynch Syndrome education & awareness, the # 1 hereditary cause of uterine & colon cancers.

Social Rank

3653

Location

Chicago

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Community Rebuilding
  • Public Health Programs

  • 335.

International Partnership for Critical Markers of Disease

TO FACILITATE A FORUM FOR THE MEDICAL AND PHARMACEUTICAL COMMUNITY FOR THE DISSEMINATION OF INFORMATION AND EDUCATION OF DOCTORS AND RESEARCHERS INVOLVED WITH HEALTH ISSUES AND THEIR RELATIONSHIPS WITH CRITICAL BIOMARKERS FOR DISEASE.

Location

Howell

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Community Rebuilding
  • Single Organization Support

  • 336.

Maghreb-American Health Foundation Inc

Improving Health, Changing lives, one Child at a time - www.

Social Rank

2500

Location

Washington

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 337.

International Association for Chronic Fatigue Syndrome-Me

THE MISSION OF IACFS/ME IS TO PROMOTE, STIMULATE AND COORDINATE THE EXCHANGE OF IDEAS RELATED TO CHRONIC FATIGUE SYNDRONE(CFS) AND FIBROMYALGIA(FM) RESEARCH, PATIENT CARE AND TREATMENT IN ADDITION, THE IACFS/ME PERIODICALLY REVIEWS THE CURRENT RESEARCH AND TREATMENT LITERATURE AND MEDIA REPORTS FOR THE BENEFIT OF SCIENTISTS, CLINICIANS AND PATIENTS.

Location

Stony Brook

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Community Rebuilding
  • Cancer

  • 338.

American Melanoma Foundation

The American Melanoma Foundation is dedicated to educating the public on melanoma prevention and the importance of taking protective measures to guard against excessive sun exposure, especially among children and young people.

Location

San Diego

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 339.

CTNNB1 SYNDROME AWARENESS WORLDWIDE

CTNNB1 Syndrome refers to complications resulting from either a mutation or deletion of the CTNNB1 gene.

Social Rank

77

Location

Dayton

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 340.

Rare Genes Movement

Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.

Social Rank

722

Location

Point Pleasant

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Community Rebuilding

Upequity Corporation

RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.

Social Rank

304

Location

Menomonee Falls

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Community Rebuilding
  • Specifically Named Diseases

  • 342.

MACKENZIES MISSION

Closing the healthcare educational gap about #amyloidosis through patient educators; focused on future and current medical providers.

Social Rank

2013

Location

GREAT FALLS

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