• Alliance/Advocacy Organizations

• 379.

The Cute Syndrome Foundation, Inc.

The Cute Syndrome Foundation raises awareness of SCN8A mutations, funds the dedicated and talented scientists researching SCN8A, and supports the families around the world who are affected by SCN8A-related disorders.

NOTHING PINK INC

NothingPink is a Non-Profit Organization with an objective of achieving the following mission: To make genetic testing more accessible to women.

Aplastic Anemia and MDS International Foundation

Aplastic Anemia and MDS Int'l Found supports patients & families with #aplastic anemia, #MDS, #PNH, and related bone marrow failure diseases #AML #PRCA #CMML Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH The Aplastic Anemia & MDS International Foundation empowers individuals diagnosed with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and their support network by providing timely information, a community of support, improved treatment through health provider education, and hope for a cure through promotion of research.

• Arthritis

• 382.

Arthritis Foundation Inc

Here for the 1 in 4 with #arthritis. | Fighting to cure the #1 cause of disability.

• Arthritis

• 383.

Arthritis Foundation Inc

Here for the 1 in 4 with #arthritis. | Fighting to cure the #1 cause of disability.

• Specifically Named Diseases

• 384.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

Lcc Foundation Inc

The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease.

• Alliance/Advocacy Organizations

• 386.

Baker-Gordon Syndrome Foundation

The BakerGordon Syndrome Foundation was founded to help families affected by this syndrome make connections with one another.

• Specifically Named Diseases

• 387.

NATIONAL ROSACEA SOCIETY

The National Rosacea Society is dedicated to improving the lives of people with rosacea through public awareness and support of medical research.