• Alliance/Advocacy Organizations

• 316.

PCD KS FOUNDATION

Working together to find a cure and improve care for those with ciliary disorders and their families by increasing awareness, research and support.

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

• Cancer

• 318.

Baileys Foundation

Stella January 23 2017 February 22 2023 Medulloblastoma Baileys Foundation is a federal 501c3 nonprofit founded in 2014 after our precious Bailey lost her battle with neuroblastoma.

Rays For Rare

Bringing uplifting support to medically fragile children and their families.

• Fund Raising and/or Fund Distribution

• 320.

Gladstone Foundation

Gladstone's mission is to drive a new era of discovery in disease-oriented science and to mentor tomorrow’s leaders in an inspiring and diverse environment.

• Birth Defects, Genetic Diseases

• 321.

Mitchell and Friends Foundation

To raise awareness of Mitchell Syndrome and support research into possible treatments and cures Raising awareness of Mitchell Syndrome and supporting families and children with this rare neurological disease.

• Education N.E.C.

• 322.

Andrew Lindhardt Memorial Foundation Inc

Projects Get Involved Events Andrewx27s Story Contact More.

• Nerve, Muscle, and Bone Diseases

• 323.

TALIA DUFF FOUNDATION INC

Cure CMT4J raises funds to support the research, development, and production of a therapy or cure for Charcot Marie Tooth Disease 4J.

• Birth Defects, Genetic Diseases

• 324.

THINKGENETIC FOUNDATION INC

Helping those living with a genetic disease by shortening the time to diagnose a genetic condition and providing actionable, patient-focused guidance.