Cornelia de Lange Syndrome Foundation, Inc.

Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.

• Alliance/Advocacy Organizations

• 353.

Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

• Alliance/Advocacy Organizations

• 354.

HYPEREMESIS EDUCATION & RESEARCH FOUNDATION

Hyperemesis Education & Research (HER) Foundation provides education & support for mothers suffering from hyperemesis gravidarum and those who care for them.

• Fund Raising and/or Fund Distribution

• 355.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

Children R Our Future of Volusia County, Inc.

https://www. childrenrourfuture. org ❤️❤️❤️EMAIL❤️❤️❤️ mamac@childrenrourfuture.

• Fund Raising and/or Fund Distribution

• 357.

Courageous Cousins

We are a 501(c)(3) non profit raising funds for cystic fibrosis research.

Emmett Goodfellow Foundation

A 501(c)3 foundation created in memory of Emmett to advocate for & support children living with ARPKD Together We Can Make a Difference Join us in our mission to support families affected by Autosomal Recessive Polycystic Kidney Disease ARPKD About The Emmett Goodfellow Foundation Emmett James Goodfellow Born on September 29 2022 Emmetts time on this earth was tragically brief as he passed away cradled in his parents arms on October 22 2022 due to complications from Autosomal Recessive Polycystic Kidney Disease ARPKD.

• Specifically Named Diseases

• 359.

YBRP Inc

YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.

• Health Support Services

• 360.

ALS UNITED MID-ATLANTIC

Caring for ALS families in eastern Pennsylvania, southern New Jersey, and all of Delaware.