• Alliance/Advocacy Organizations

• 307.

ARPKD/CHF Alliance

The ARPKD/CHF Alliance is only organization in the world solely committed to both Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis.

The Paisley Foundation Inc

Raise awareness of Thanatophoric Dysplasia, financially support clinical research, and provide financial assistance and community resources to affected families Raise Awareness of Thanatophoric Dysplasia Financially Support Clinical Research and Provide Financial Assistance and Community Resources to Affected Families Building a Community to Support TD Families The foundations purpose is to raise awareness of Thanatophoric Dysplasia TD financially assist families both in their everyday lives and where insurancesocial programs fall short and to be a community resource for families present and future whose children have TD.

BEYOND BATTEN DISEASE FOUNDATION

Mission: eradicate Batten disease. Batten disease is a fatal neurodegenerative disorder that takes away childhood, and then takes away.

• Birth Defects, Genetic Diseases

• 310.

Kallmann Syndrome & Chh Patient Group Inc

A nonprofit devoted to those with Kallmann's Syndrome & CHH A nonprofit dedicated to raising awareness on Kallmann's Syndrome & CHH ABOUT US I am H.

• Fund Raising and/or Fund Distribution

• 311.

Gardaccess Inc

Accelerating access to quality healthcare Addressing Unmet Needs in Rare Diseases Access to lifesaving medicine programs in low and middleincome countries LMIC presents a significant unmet need for patients living with rare disorders.

• Birth Defects, Genetic Diseases

• 312.

Ella M Bransom Sickle Cell Association

Mission is to advocate for and enhance our Southern Colorado membership's ability to improve their quality of health.

• Specifically Named Diseases Research

• 313.

Sleep Consortium

Sleep Consortium accelerates next-generation research and therapy development for Central Disorders of Hypersomnolence through a data collection ecosystem.

Lcc Foundation Inc

The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease.

• Specifically Named Diseases Research

• 315.

Aubrey Osullivan Foundation

Founded by two parents dedicated to drastically accelerating RBM research.