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Similar organisations to Dion Foundation for Children with Rare Diseases Inc

Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 298.

Center for Human Genetics Inc

TO FUNCTION AS A LOCAL AND NATIONAL CLINIC AND DIAGNOSTIC REFERENCE RESOURCE FOR BIRTH DEFECT AND GENETIC DISORDERS; TO PROVIDE TECHNOLOGY AND SERVICES TO REFERRING PHYSICIANS AND PATIENTS FOR THE BENEFIT OF ALL PERSONS SUFFERING FROM ILLNESS, DEFECTS OR DISORDERS; TO TEACH MEDICAL STUDENTS, RESIDENTS, FELLOWS AND OTHER PERSONNEL ENGAGED IN HEALTH SERVICES AND HEALTH EDUCATION; TO ADVANCE SCIENTIFIC KNOWLEDGE THROUGH RESEARCH; TO TAKE ACTIVE PART IN THE PLANNING FOR AND THE PROMOTION OF THE SPECIFIC GENETIC AND GENERAL MENTAL AND PHYSICAL HEALTH AND HUMAN NEEDS AND INTERESTS OF THE LOCAL AND NATIONAL PATIENT POPUATION AND THEIR PHYSICIANS; TO PROVIDE SERVICES RELATED TO GENETICS; TO GATHER DATA AND ANALYZE IT FOR THE PURPOSE OF SHARING IT GENERALLY WITH THE LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES; TO IMPROVE AND DEVELOP TESTING PROTOCOLS AND KNOWLEDGE AND TO SHARE SUCH RESULTS FREELY AND OPENLY; TO ESTABLISH, OWN, OPERATE, CONDUCT OR MAINTAIN FACILITIES FOR TEACHING.

Location

Cambridge

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Community Rebuilding

LACNETS

Learn Advocate Connect Neuroendocrine Tumor Society.

Social Rank

1910

Location

Denver

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Community Rebuilding
  • Education N.E.C.

  • 300.

Illinois Society of Genetic Professionals

The end-to-end platform for agencies and enterprises.

Social Rank

110411

Location

Chicago

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Community Rebuilding
  • Patient Services�Entertainment, Recreation

  • 301.

Mtm-Cnm Family Connection Inc

MTM-CNM Family Connection is a 501c3 that exists to connect those with Myotubular Myopathy & Centronuclear Myopathy to resources, research, and relationships.

Social Rank

1228

Location

Methuen

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Community Rebuilding

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

Social Rank

3774

Location

Denver

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Community Rebuilding
  • Biomedicine, Bioengineering

  • 303.

National Biomedical Research Ethics Council

Item 1 NBREC was to estabish a single.

Location

Las Vegas

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Community Rebuilding
  • Professional Societies & Associations

  • 304.

Hypertrophic Cardiomyopathy Medical Society

A community of physicians, scientists and medical providers dedicated to improving the diagnosis and treatment of hypertrophic cardiomyopathy Professional medical society dedicated to improving the diagnosis and treatment of people with hypertrophic cardiomyopathy through clinical excellence, research and education.

Social Rank

1091

Location

Raleigh

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 305.

Zc4H2 Research Foundation Inc

A parent-led, nonprofit organization created to support scientific and medical research on ZC4H2 Associated Rare Disorders (ZARD).

Social Rank

560

Location

Albany

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Community Rebuilding

THE BUONICONTI FUND TO CURE

The Miami Project is the leader in SCI & brain injury research and based at the University of Miami.

Social Rank

16482

Location

MIAMI

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