PHEO ALLIANCE

Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma The mission of the Pheo Para Alliance is to invest in research to accelerate treatments and cures while empowering patients, their families, and medical professionals through advocacy, education and a global community of support.

• Surgery

• 281.

American Association of Neurosurgeons Inc

NREF, the philanthropic arm of @AANSNeuro, advances patient care by supporting neurosurgical research, education and innovation.

• Birth Defects, Genetic Diseases

• 282.

Gene Spotlight Inc

We are a nonprofit medical research and advocacy organization committed to spark breakthroughs in treatments and cures for rare genetic disorders, including lysosomal storage diseases, uncommon cancers and other orphan diseases.

• Specifically Named Diseases

• 283.

Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

• Private Grantmaking Foundations

• 284.

D Jones Family Charitable Foundation Inc

WPlook is a creative Web Studio that creates professional and attractive Premium WordPress Themes.

• Health Support Services

• 285.

Kinera Foundation

Pediatric Physical therapy, Occupational therapy, Speech therapy, resources & parent navigation and support Mission: to enhance the quality of life for children with special healthcare needs & disabilities Kinera Foundation will enhance the quality of life for children with special needs and their families.

Connective Tissue Coalition, Inc

Empowering Progress; Inspiring Hope Our Mission: The Connective Tissue Coalition (CTC) drives research, raises awareness, and provides resources for individuals affected by Ehlers-Danlos, Marfan, and Loeys-Dietz Syndromes.

• Specifically Named Diseases

• 287.

Project CASK

An innovative rare disease non-profit driving breakthroughs in treatments and a cure for CASK gene disorders.

• Public Foundations

• 288.

The Mathew Forbes Romer Foundation Inc

Education & Research of Children's Genetic Diseases of the Brain MFRF was founded in South Florida in 1998 with a mission to prevent and eventually cure fatal children's genetic diseases of the brain.