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Similar organisations to Fibrolamellar Registry Inc

Community Rebuilding

Oliver Foundation Inc

Cancer’s avoidable. It’s triggered externally.

Social Rank

511

Location

Miami Beach

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Community Rebuilding

Answer ALS

The single largest coordinated and comprehensive research effort to find a treatment or cure for ALS in the history of the disease.

Social Rank

10821

Location

NEW ORLEANS

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 300.

COALITION TO CURE CALPAIN 3

Coalition to Cure Calpain 3 (C3) has a pinpoint focus: to drive research towards a cure for limb-girdle muscular dystrophy type 2A (LGMD2A/R1, a form of Calpainopathy).

Location

Westport

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Community Rebuilding

Lcc Foundation Inc

The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease.

Location

Lake St Louis

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Community Rebuilding

Pacs1 Syndrome Research Foundation

THE GOAL OF THE PACS1 SYNDROME RESEARCH FOUNDATION IS TO FIND A TREATMENT FOR PACS1 SYNDROME (A DEBILITATING NEURO-GENETIC DISEASE) IN THE SHORTEST POSSIBLE TIME-FRAME BY FUNDING CUTTING-EDGE SCIENTIFIC RESEARCH About Us Contact Registry Scientific Advisory Board Funded Research More Funding Scientific Research to find Treatments for PACS1 Syndrome JOIN US DONATE AND MAKE A DIFFERENCE TODAY.

Location

OLD GREENWICH

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Community Rebuilding

Marrow Mates Incorporated

Cover-to-cover BMT advocacy & awareness.

Social Rank

202

Location

St Petersburg

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 304.

Jscreen org Inc

jscreen is a national, non-profit, public health initiative dedicated to preventing genetic diseases & promoting healthy families.

Social Rank

842

Location

Hanover

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Community Rebuilding
  • Cancer

  • 305.

NATIONAL PANCREATIC CANCER

Mission – We exist to deliver unwavering support for patients and families fighting pancreatic cancer Learn Resources Patients Caregivers More patients will die from pancreatic cancer thanbreast cancer this year.

Social Rank

10934

Location

RAPID CITY

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Community Rebuilding
  • Science, General (includes Interdisciplinary Scientific Activities)

  • 306.

ASH REGISTRY INC

The ASH Research Collaborative (ASH RC) is a non-profit organization that was established by ASH in 2 Request for Applications RFA Open The ASH Research Collaborative ASH RC invites prospective research sites to submit applications to join the ASH RC Sickle Cell Disease SCD Research Network Council now through April 14 2025.

Social Rank

252

Location

WASHINGTON

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