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Similar organisations to Fibrolamellar Registry Inc

Community Rebuilding

Chordoma Foundation

Improving the lives of those affected by chordoma.

Social Rank

13754

Location

Durham

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 353.

PSC Partners Seeking a Cure

The mission of PSC Partners Seeking a Cure is to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by this rare disease.

Location

Greenwood Village

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Community Rebuilding

Family Cancer Network Inc

We connect Iowa cancer patients and the families to the financial resources and support they need, so they can focus on the fight.

Social Rank

27

Location

Des Moines

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Community Rebuilding
  • Cancer

  • 355.

American Cancer Society Cancer Action Network Inc

ACS CAN advocates for evidence-based public policies to reduce the cancer burden for everyone.

Social Rank

100517

Location

Washington

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Community Rebuilding

JOHN WAYNE CANCER FOUNDATION

In honor of John Wayne, his family created JWCF to bring courage, strength, & grit to the fight against cancer Run in the #JohnWayneGritSeries link below 👇 To honor his memory, his family created the John Wayne Cancer Foundation in 1985.

Social Rank

99541

Location

Costa Mesa

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Community Rebuilding

Rare New England Inc

Rare New England's Mission is to bring together New England patients and families touched by rare and complex disorders.

Social Rank

3272

Location

ATTLEBORO

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Community Rebuilding
  • Specifically Named Diseases

  • 358.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

Social Rank

1141

Location

Austin

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 359.

Forever in A Moment Inc

Our mission is to help other families like ours going through the toughest battle of their lives.

Location

North Amherst

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Community Rebuilding
  • Diseases of Specific Organs

  • 360.

NATIONAL FOUNDATION FOR CELIAC

Committed to finding treatments and a cure for celiac disease.

Social Rank

181436

Location

AMBLER

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