WILLIAMS SYNDROME ASSOCIATION INC

WSA: research, programming and support for families and caregivers affected by Williams syndrome.

Phelan McDermid Syndrome Foundation

Official site of the Phelan-McDermid Syndrome Foundation.

Smith-Lemli-Opitz Foundation

The Smith-Lemli-Opitz Foundation is a non-profit organization dedicated to supporting families, individuals and professionals dealing with Smith-Lemli-Opitz.

HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

The Gordon Owino Heart Foundation

The mission of the Gordon Owino Heart Foundation is to provide hope and support services to children and families affected by congenital heart defects, the number 1 birth defect in America.

The WHITE DRESS PROJECT INC

The White Dress Project is a non-profit supporting people who are managing life w/uterine fibroids.

• Alliance/Advocacy Organizations

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Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

WILLIAM E PROUDFORD SICKLE CELL

Read about Pfizers Decision to Withdraw Oxbryta Awareness help spread the word about sickle cell disease Education learn about the impact of sickle cell disease Hope find out about research for new treatments and a universal cure Our vision is a world withoutsickle cell disease EXPLORE WHAT WE DO PARTNERSHIPS Program Support We support comprehensive multidisciplinary stateoftheart treatment and research at leading institutions in the MidAtlantic area Nemours Alfred I.

• Professional Societies & Associations

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NOONAN SYNDROME FOUNDATION

Noonan Syndrome (NS) is the most common syndrome you've never heard of.