HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

The Gordon Owino Heart Foundation

The mission of the Gordon Owino Heart Foundation is to provide hope and support services to children and families affected by congenital heart defects, the number 1 birth defect in America.

• Fund Raising and/or Fund Distribution

• 282.

HUNTER SYNDROME FOUNDATION

The Hunter Syndrome Foundation is a 501(c)3 non-profit corporation with a mission to fund potential therapies that will ultimately find a cure for this disorder.

• Birth Defects, Genetic Diseases

• 283.

Louvenia D Barksdale Sickle Cell Anemia Foundation Inc

Improving the quality of life and care for individuals and families impacted by Sickle Cell Anemia.

• Specifically Named Diseases Research

• 284.

PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

Mississippi Metabolics Foundation

Hi, I am Shannah, mom to Emmalyn, who has a rare genetic metabolic disorder, Glutaric Aciduria/Acidemia Type 1.

• Human Service Organizations

• 286.

Maia Talley Foundation

MTF Inc. is a 501(c)(3) Nonprofit, & advocates for the underserved and at risk Sickle Cell Community About Us Our Mission The mission of Maia Talley Foundation Inc.

• Patient Services�Entertainment, Recreation

• 287.

SITOSTEROLEMIA FOUNDATION

Sitosterolemia Foundation Home About us About Sitosterolemia Resources Events FAQ Contact Us More Supporting families and individuals with Sitosterolemia Sitosterolema Foundation is a nonprofit organization dedicated to supporting families individuals and professionals dealing with Sitosterolemia a rare sterol disease.

VERSITI INDIANA INC

We are Blood Health Innovators who enhance lives through discovery, diagnosis, and treatment.