• Cancer

• 28.

KrabbeConnect

KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease.

• Birth Defects, Genetic Diseases Research

• 29.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

• Fund Raising and/or Fund Distribution

• 31.

Life for Liam and Friends Foundation

Mission to support families who are impacted by NPC and help find a cure through connecting NPC families, spreading awareness, and supporting medical research.

• Alliance/Advocacy Organizations

• 32.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

• Fund Raising and/or Fund Distribution

• 33.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.

CureSHANK

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.

• Single Organization Support

• 35.

For A Cure NW

For A Cure NW's sole purpose is to raise funds in support of patients and research involved with The High Risk Leukemia Program at Seattle Children's Hospital.

Kindness for Kimberlee

Kindness for Kimberlee is a non-profit organization helping children affected by Steven's-Johnson Syndrome and Toxic Epidermal Necrolysis.