• Community Foundations

• 253.

Susanna and Lucy Delaurentis Charitable Foundation

COURAGE COMPASSION SERVICE Saving the Lives and Dignities of Young People with Life-threatening Disease Make A Donation The Susanna and Lucy DeLaurentis Charitable Foundation honors the memory and spirit of Lucy DeLaurentis who died of cystic fibrosis and Susanna DeLaurentis who died at age 10 from complications of neuroblastoma.

FAMILIAL DYSAUTONOMIA NOW FOUNDATION

FD NOW is a 501c3 non-profit organization dedicated to funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

Nf Team Foundation

We are a 501c3 nonprofit organization raising money to find effective treatments for neurofibromatosis (NF), raising awareness of the disorders, and providing hope and inspiration for the NF family.

• Alliance/Advocacy Organizations

• 256.

PTEN Hamartoma Tumor Syndrome Foundation

PTEN is a tumor suppressor gene. When mutated at birth a patient is at higher risk for many #cancers and #autism.

• Specifically Named Diseases Research

• 257.

The Snow Foundation

A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration.

• Human Service Organizations

• 258.

Yoey S Hope Inc

PUBLIC EDUCATION AND AWARENESS ON WOLF-HIRSCHHORN SYNDROME AND CHARITABLE SUPPORT FOR FAMILIES OF CHILDREN WITH WOLF-HIRSCHHORN SYNDROME.

Hfm Camping Adventures

The Hemophilia Foundation of Michigan strives to improve the quality of life for all people affected by hemophilia, von Willebrand disease, and other coagulation disorders and related complications including HIV/AIDS and hepatitis.

Willstrong Foundation Trust

WillStrong is dedicated to providing financial support for research to bring more precise and effective treatments to children and young adults diagnosed with acute myeloid and other high-risk leukemia.

• Birth Defects, Genetic Diseases

• 261.

THINKGENETIC FOUNDATION INC

Helping those living with a genetic disease by shortening the time to diagnose a genetic condition and providing actionable, patient-focused guidance.