Race for Adam Foundation

Adam Recke was diagnosed in 2005 with an extremely rare, degenerative terminal disease, Type-C Niemann-Pick Syndrome.

• Birth Defects, Genetic Diseases

• 245.

Gene Spotlight Inc

We are a nonprofit medical research and advocacy organization committed to spark breakthroughs in treatments and cures for rare genetic disorders, including lysosomal storage diseases, uncommon cancers and other orphan diseases.

• Human Service Organizations

• 246.

Tanners Team Foundation

Welcome to Tanner's Team Foundation. Supporting families facing childhood illness in Central Minnesota.

• Birth Defects, Genetic Diseases

• 247.

Kallmann Syndrome & Chh Patient Group Inc

A nonprofit devoted to those with Kallmann's Syndrome & CHH A nonprofit dedicated to raising awareness on Kallmann's Syndrome & CHH ABOUT US I am H.

• Nonmonetary Support N.E.C.*

• 248.

Curedrpla Inc

I’m a parent advocate for DRPLA, a rare genetic disease.

• Alliance/Advocacy Organizations

• 249.

Charlotte and Gwenyth Gray Foundation

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease.

Hwangstrong Foundation

Our son, Jakob Hwang, used to say, "Having cancer isn't hard.

• Alliance/Advocacy Organizations

• 251.

Nrxn1 Network

Our mission is to build a collaborative network of families, clinicians, and scientists in order to support individuals affected by NRXN1 disorder.

• Birth Defects, Genetic Diseases

• 252.

NF2 Biosolutions

NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis NF2 BioSolutions, is a 100% volunteer-run, nonprofit organization that funds research for NF2 Accelerating Novel Therapy Research for Neurofibromatosis Type 2 Gene Therapy is changing the world of genetic diseases.